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    Last Updated: 10/30/2025

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    MediFind found 38 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Grand Rapids, MI. Of these, 38 are Experienced.

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    38 providers found
      Stefania L. Zurita
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English, Spanish

      Stefania Zurita is a Cardiologist in Grand Rapids, Michigan. Dr. Zurita has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Coronary Artery Fistula.

      Kurt R. Bjorkman
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kurt Bjorkman is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Bjorkman has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Pulmonary Vein Stenosis. Dr. Bjorkman is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Kim G. Lee
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      35+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kim Lee is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Lee has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Heart Murmurs, and Patent Ductus Arteriosus. Dr. Lee is currently accepting new patients.

      Learn about our expert tiers
      Sarah E. Fahnhorst
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English

      Sarah Fahnhorst is a Cardiologist in Grand Rapids, Michigan. Dr. Fahnhorst has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Double Discordia, Tetralogy of Fallot, Bicuspid Aortic Valve, and Ebstein's Anomaly.

      Stanley C. Sedore
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stanley Sedore is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Sedore has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Familial Dilated Cardiomyopathy, Brugada Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), and Short QT Syndrome. Dr. Sedore is currently accepting new patients.

      Jeffrey R. Schneider
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      39+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Schneider is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Schneider has been practicing medicine for over 39 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Pulmonary Artery Agenesis. Dr. Schneider is currently accepting new patients.

      Heather A. Sowinski
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Heather Sowinski is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Sowinski has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Turner Syndrome, Mixed Gonadal Dysgenesis, Heart Tumor, and Atrial Myxoma.

      Linda Z. Rossetti
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

      Yasser Al
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients

      Yasser Al is a Pediatrics specialist and a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Al has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Double Discordia, and Pulmonary Artery Agenesis. Dr. Al is currently accepting new patients.

      Stephanie-grace A. Raymundo
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie-grace Raymundo is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Raymundo has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Patent Ductus Arteriosus, Pulmonary Atresia, Ventricular Septal Defects, and Heart Murmurs. Dr. Raymundo is currently accepting new patients.

      Kelly J. Barcheski
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Corewell Health Internal Medicine - 426 Michigan St NE

      426 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Offers Telehealth

      Kelly Barcheski is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Barcheski has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Sepsis, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension.

      Julie A. Conley
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Julie Conley is a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Strabismus, Legius Syndrome, Esotropia, and RASopathies.

      Julie J. Sommerfield
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients

      Julie Sommerfield is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Sommerfield has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Patent Ductus Arteriosus, Cor Triatriatum, Ventricular Septal Defects, and Coronary Artery Fistula. Dr. Sommerfield is currently accepting new patients.

      M A. Mansour
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery

      Corewell Health Vascular Surgery - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      46+ years
      Languages Spoken:
      English
      Accepting New Patients

      M Mansour is a Vascular Surgeon in Grand Rapids, Michigan. Dr. Mansour has been practicing medicine for over 46 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Varicose Veins, Stasis Dermatitis and Ulcers, Venous Insufficiency, and Arterial Insufficiency. Dr. Mansour is currently accepting new patients.

      Adam J. Rush
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Grand River Rehabilitation LLC

      412 Plymouth Avenue Northeast, 
      Grand Rapids, MI 
       (2.5 miles away)
      Experience:
      27+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adam Rush is a Physiatrist in Grand Rapids, Michigan. Dr. Rush has been practicing medicine for over 27 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Cerebral Palsy, Hypermobile Joints, and Paraplegia. Dr. Rush is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics | Cardiology
      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English

      Linda Pauliks is a Pediatric Cardiologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Pauliks is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Idiopathic Dilatation of the Pulmonary Artery, Pulmonary Vein Stenosis, Bicuspid Aortic Valve, and Double Discordia.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Mary Free Bed Rehabilitation Hospital

      235 Wealthy St Se, 
      Grand Rapids, MI 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Philip Baty is a primary care provider, practicing in Family Medicine in Grand Rapids, Michigan. Dr. Baty is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Fibromyalgia, Central Pain Syndrome, Myelofibrosis, and Chronic Pain. Dr. Baty is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Catherine's Health Center

      1211 Lafayette Ave Ne, 
      Grand Rapids, MI 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Heather Bunting is a primary care provider, practicing in Family Medicine in Grand Rapids, Michigan. Dr. Bunting is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Chronic Obstructive Pulmonary Disease (COPD), and Lung Metastases. Dr. Bunting is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Age Management Of West Michigan PC

      2510 Lake Michigan Dr Nw, 
      Grand Rapids, MI 
       (2.9 miles away)
      Languages Spoken:
      English, Bengali
      Accepting New Patients
      Offers Telehealth

      Shahnaz Ali is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Ali is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Menopause, Vertigo, Hypothyroidism, and Obesity in Children. Dr. Ali is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Metropolitan Hospital

      4200 N Division Ave, Metro Health Comstock Park, 
      Comstock Park, MI 
       (4.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Janice Wabeke is a primary care provider, practicing in Family Medicine in Comstock Park, Michigan. Dr. Wabeke is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Myelodysplastic Syndrome (MDS), Generalized Anxiety Disorder (GAD), Type 2 Diabetes (T2D), and Tracheitis. Dr. Wabeke is currently accepting new patients.

      Showing 1-20 of 38

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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